Question To Ask Your Doctor

Questions to ask after getting a diagnosis

  • What type of brain tumor do I have?

  • Is the tumor cancerous?

  • What is the tumor’s grade? What does this mean?

  • Can you explain my pathology report (laboratory test results) to me?

  • Will an experienced neuropathologist review my pathology slides?

  • Do you have reading material that would help me understand my disease?

  • Who will be leading my overall treatment?

  • Should I get a second opinion?

  • Do you attend expert meetings to discuss complicated tumor cases?

  • Are there brain tumor centers of excellence that you recommend I contact?

  • Does your practice include multidisciplinary care? What does this mean?

  • If I’m worried about managing the costs of medical care, who can help me?

  • Do you know of a local support group for people with brain tumors?

 

Questions to ask about choosing a treatment and managing side effects

  • What are my treatment options?

  • What clinical trials are available for me? Where are they located, and how do I find out more about them?

  • How many brain tumors do you treat each year?

  • What treatment plan do you recommend? Why?

  • What is the goal of each treatment? Is it to eliminate the tumor, help me feel better, or both?

  • Would any of these treatment options keep me from participating in a clinical trial in the future?

  • When should I start treatment?

  • Who will be part of my health care team, and what does each member do?

  • What are the possible side effects of each treatment, both in the short term and the long term?

  • How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?

  • Could this treatment affect my sex life? If so, how and for how long?

  • Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before treatment begins?

  • What level of caregiving will I need during treatment and recovery?

  • Whom should I call with questions or problems?

 

Questions to ask about having surgery

  • What type of surgery will I have?

  • How long will the operation take?

  • How long will I be in the hospital?

  • Can you describe what my recovery from surgery will be like?

  • What are the possible long-term effects of having this surgery?

 

Questions to ask about having radiation therapy, chemotherapy, or targeted therapy

  • What type of treatment is recommended?

  • What is the goal of this treatment?

  • How long will it take to give this treatment?

  • What side effects can I expect during treatment?

  • What are the possible long-term effects of having this treatment?

  • What can be done to relieve the side effects?

 

Questions to ask about planning follow-up care

  • What is the chance that the tumor will come back? Should I watch for specific signs or symptoms?

  • What long-term side effects or late effects are possible based on the treatment I received?

  • After treatment, what follow-up tests will I need, and how often will I need them?

  • How do I get a treatment summary and survivorship care plan to keep in my personal records?

  • Who will be leading my follow-up care?

  • What survivorship support services are available to me? To my family?

Additional Resources:

www.cancer.net/cancer-types/brain-tumor